Business Tour
De Business Tour is een echte tourrally, waarin het spel tussen navigator en rijder centraal staat. Om even in de mood te komen:
De mooiste en slechtst vindbare weggetjes van Oost-Nederland. De prachtigste uitzichten. Even flink gas geven tijdens een slalom op een oud vliegveld. Lunchen in een hangar. Verdwalen in een gebied dat je eigenlijk behoort te kennen. Een culinaire finish op een verrassende locatie. En de afgelopen vijf edities stralend weer, waardoor de glimmende bolides en cabrio’s optimaal tot hun recht kwamen.
Natuurlijk bieden resultaten uit het verleden geen garantie voor de toekomst. Toch raden wij u aan om mee te doen. Schrijf u in!
De Business Tour is een initiatief van Bcause, organisator van onder andere de Miles of Mystery en DomDomDom Rally. Net als bij deze rally’s staat bij de Business Tour een goed doel centraal. Van de opbrengst gaat 20% rechtstreeks naar Stichting Jasper Against Batten.
Klik op onderstaande link voor meer informatie en om in te schrijven.
De 4 daagse (sponsor)loop
Jolanda Van den Berg uit Woerden doet dit jaar opnieuw mee aan de vierdaagse in Nijmegen. Vorig jaar heeft ze al honderden Euro’s bijeen gelopen voor onze stichting en dit jaar gaat Jolanda kijken of dit valt te evenaren. Wil je Jolanda helpen om zoveel mogelijk geld bij elkaar te lopen voor batten disease? Klik op onderstaande link voor verder informatie en om Jolanda te sponsoren.
Benefietoptreden voor Stichting Jasper Against Batten door NederBob!
Zaterdag 5 maart zal de band NederBob optreden in het Bierhuys in Woerden (van Oudheusdenstraat 3a). Aanvang tussen 21:00 uur en 22:00 uur.
Deze avond speelt de band voor JasperAgainstBatten! Dit houd in dat de gage voor de band in zijn geheel toekomt aan dit goede doel. Er zal ook in het café een collectebus komen te staan voor het goede doel zodat iedereen die wil een donatie kan doen.
Voor verdere informatie; zie ook www.bierhuys.nl
Hopelijk tot zaterdag 5 maart in het Bierhuys!
Chicago Marathon
Op 10-10-10 is de Chicago Marathon. ABNAMRO Clearing Chicago collega’s Frank Hooglander, Jason Real en Wendy Stedehouder zullen voor de eerste keer een marathon lopen! Onze JasperAgainstBatten organisatie is het goede doel dat zij zullen steunen als zij deze marathon rennen. Daarmee helpen Frank en zijn collega’s ons research te funden dat uiteindelijk zal leiden tot een ‘cure’ voor deze vreselijke ziekte. Als je dit trio en onze organisatie wilt steunen; klik dan svp op de link hieronder. Vergeet niet de naam van Frank, Wendy of Jason te noemen in het ‘free text’ veld. Hartelijk dank voor uw steun! En vergeet natuurlijk niet om onze helden aan te moedigen op 10-10-10!
VacanceSelect helpt JasperAgainstBatten
De Nederlandse reisorganisatie VacanceSelect heeft besloten om onze organisatie een helpende hand toe te steken. De leerlingen van juffrouw Joke Dijk-Boersma, die studeren aan het Vincent van Gogh College te Assen, hebben vorig jaar een prachtige gedichtenbundel gemaakt. De boekjes werden verkocht en de verkoopopbrengst kwam geheel ten gunste van onze Nederlandse stichting Jasper Against Batten. Zie verder de nieuwslink naar een uitzending van Hart Van Nederland die hier destijds een report van maakte. hartvannederland.nl
De reisorganisatie VacanceSelect gaat nu verder met dit thema. Zij hebben maar liefst 30.000 gedichtenbundels laten drukken en zullen deze de komende tijd verspreiden onder hun klanten. Daarmee verkrijgt deze ziekte in elk geval meer bekendheid en krijgen we hopelijk meer supporters die ons kunnen helpen om onderzoek te financieren. Zodoende kunnen we een oplossing voor deze ziekte weer een flinke stap dichterbij te brengen. VacanceSelect en haar werknemers hebben in elk geval vast een begin gemaakt door zelf een flinke donatie te doen! We hopen natuurlijk dat u hen daarin volgt!
Voor verdere informatie omtrent deze actie verwijzen we u naar de website van VacanceSelect; vacanceselect.nl (of klik op het onderstaande logo).
St. Dominicus school Fancy Fair
Op 28 mei 2010 wordt de Dominicus basis school in Utrecht (Oog in Al) omgetoverd tot een waar winkelparadijs. Elke klas zal een winkeltje worden waar er naar hartelust gekocht en verkocht kan worden. Verder kunnen kinderen grabbelen uit de grabbelton of vissen in het zwembad naar leuke cadeautjes! Ook treedt een ‘echte Hollandse Michael Jackson’ op die zijn dansjes laat zien! ‘Handelscentrum Dominicus’ zal al het ingezamelde geld ter beschikking stellen aan de Stichting Jasper Against Batten en KiKa!!!!
Utrecht Marathon 5 April 2010
De Utrecht marathon was een groot succes! Een flink aantal mensen liep in een JAB shirt (op de verschillende afstanden) en het lijkt erop dat we ongeveer 2.500 euro hebben in pledges. Iedereen bedankt voor het meedoen en de support!
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Loop je mee voor Jasper tijdens de marathon van Utrecht? Na de Chicago Shamrock Shuffle loop (zie hieronder) nu ook in Nederland een sponsorloop.
Naast een goed gevoel levert het je ook een mooi t-shirt op.
Steun de stichting Jasperagainstbatten voor € 25,- en loop mee in een t-shirt met het logo van Jasperagainstbatten, een ballon om tijdens de wedstrijd mee te dragen. Voorafgaand aan de wedstrijd krijg je van ons het t-shirt met het logo van de stichting.
Tevens kun jij je laten sponsoren door familie, bekenden, werk en vrienden!
De bankgegevens van Jasper Against Batten: Fortis Bank Nederland 81.62.88.216. Zie verder ook de ‘Donate’ section op deze website.
Hopelijk zien we je op 5 April in Utrecht!!
Chicago Shamrock Shuffle Run
March 21 2010 was the day of the Chicago Shamrock Shuffle run. We did run with two Fortis Clearing Americas teams that participated in this event in honor of Jasper and our foundation! And everyone of them did a great job! For more info: http://www.shamrockshuffle.com/
Many thanks for those who supported the runners and their cause; In total we raised almost $6,000 in donations which is awesome!
If you still want to donate for this event; please click on the link below or go to the donation section of this website. Don’t forget to mention which runner you support so we can keep track of the donations for this event and keep you up to date on this website of our progress! You can mention the name of the runner either in the ‘2nd billing address’ or in the ‘note to the seller’ section if you go online to donate.
Many thanks!
Dutch trader’s poker championship for charity in Amsterdam
Who is the best poker player amongst all Dutch traders?
On Saturday the 27th of February, The Mood (Keizersgracht 125-127, Amsterdam) will host 100 traders who will bluff their way to become the first Dutch Trader’s Poker Champion.
Charity
All revenues out this tournament will go to charity. The winner will get the honor (and bragging rights!) of being the best poker player amongst all traders, nothing more, nothing less. This year’s charity is Jasper against Batten (Jasperagainstbatten.org). The Batten Disease is a cruel and rare childhood disorder for which there is currently no cure. Over time, children affected by Batten disease/LINCL suffer from seizures, mental impairment and progressive loss of sight and motor skills. Specifically, children become blind, bedridden, have to be tube-fed and are unable to communicate. At this point in time, Batten/LINCL is always fatal and ends in death usually between the ages of 8 and 12.
Buy-in
The buy-in is 200 euro per player (but all food and drinks are for free as we have found a sponsor who will pay for food, drinks and location). All proceeds will go directly and for 100 percent to the charity fund. Additionally there will be an auction and a possibility to donate to the charity on the day itself.
Rules
The tournament will be Texas Hold’em No Limit. The exact rules will be sent to each player 2 weeks before the tournament. Besides professional poker tables we have found a brush (referee) who is willing to solve any poker related problem that can arise in the heat of the game.
Respond
Please reply to the email adress below if you want to join. A group of around 20 traders from several trading entities have already confirmed their particiaption in this tournament. If you would like to form a team with your colleagues and want to play for the overall poker power house title, please subscribe as a team with at least 4 traders in 1 team (max 6).
The winning team can select next year’s charity and have the option to organize the tournament next year.
Sponsors
The name of each table will be auctioned. Please reply to this email if you want to place your bid to get your name or the name of your company on one of the tables. The highest bidder will have his name on the table where the final is played.
Thanks for your attention, see you at the 27th of Feb.
Please contact Iain Somers at Market Wizars B.V. for more information or to participate: email somers@marketwizards.nl
A Birthday Bash Against Batten: A Family Day of Play’ To Fight Rare Childhood Disease
Nothing exciting for the kids to do on a cold Sunday in January?
Join us for a fun day of activities, sports, pokemon, balloons, food, auction, cake, raffle and more…and help fight a fatal children’s disease and save a local child!
The Lakeshore Athletic Club will be hosting: A Birthday Bash Against Batten: A Family Day of Play’ To Fight Rare Childhood Disease.
Sunday, January 24, 1-4 pm (Chicago): On the same opening weekend of the highly anticipated Harrison Ford film, Extraordinary Measures, about a father’s heroic race to develop a cure for his children’s rare, fatal disease, Chicago families will be gathering at Lakeshore Athletic Club on Fullerton, to continue their own inspiring effort which so many school children started this past Spring on behalf of one of their own, Jasper Duinstra. This fun afternoon of activities, sports, auction, food and prizes will also be a celebration of Jasper’s 5th Birthday. For only a $20 donation per child, activities such as swimming, obstacle course runs, tennis, arts and crafts, basketball, and dance will be offered throughout the afternoon for children ages 3-10. There will be storytelling, face painting and Balloon animals as well and a Pokemon Trading Room will be set up for kids who want to trade cards. A silent auction will be held throughout the event, which will be MC’d by ABC anchor Ravi Baichwald and local vendors will be providing great food. Top Chicago Kids’ Photographer, Classic Kids will also be offering mini-photo shoot appointments onsite for a separate donation.
Best Buy, Jock’s Bar and Grill, Reinhart Food Service,NYC Bagel and Deli, Alpha Baking, Devil Dawgs, Caffe Baci and Kronos will be among those supporting this event, providing great prizes and food.
PHILLY option trading community email-athon to help find a cure for Batten disease in November
The PHILLY option trading community is partnering with the Jasper Against Batten Fund to raise awareness about Batten Disease, to support children who suffer from it and to help find a cure to this rare, fatal disease. The PHILLY option trading community will designate the month of November as a month to contact and email friends and family with a goal of raising $20,000 for the Jasper Against Batten Fund. The Jasper Against Batten Fund has raised in excess of $750,000 but they still need our help.
To participate in this; please follow this link: PHILLY Option Traders email-athon or click below on the word PHILLY Option Traders DONATE and mention the letters PHILLY in the ‘note to seller’ section at Paypal or on your check so we can keep track of this PHILLY action in the graph below throughout the month of November. $15,050.- has been raised in in this email-athon!
Overview of previous fundraising activities:
Capstone Global Markets Charity Day
Capstone Global markets, a premier alternative investment fund based in New York city, hosted a fundraising event in favor of our Jasper Against Batten organisation on October 1st. Please find below the details. Paul Britton, the CEO of the firm has informed us that they raised a total of $160,000 for our foundation!!! This is the biggest succes we have had so far in terms of fundraising and puts us at almost the $750,000 in raised funds since we have started this organization about 5 months ago….A very big ‘thank you’ for Paul and his team for this major contribution!!
Chicago Triathlon 2009
Team TriHard, founded by Tim and Anna Johnson, comprises men and women athletes across ability levels and interests who gather each week to focus on their quest to complete the triathlon. Today, these athletes are banding together, now focusing their efforts on raising awareness and funding for Jasper Against Batten in the search for near-term treatments of Batten Disease. As part of these efforts, several of the team members will be racing the Chicago Triathlon, August 30th, in honor of Jasper. They will wear shirts honoring him and the fight against this deadly disease. In addition, several children of the TriHard members will be racing the McDonald’s Kids’ Triathlon the day before (Aug. 29th) in honor of Jasper.
Kids TriHard for Jasper is a youth triathlon group formed to raise awareness and funding for Jasper Against Batten in the fight against Batten Disease. They will be racing in the McDonald’s Kids’ Tri on Saturday, August 29th at Foster Avenue Beach. Up to 1,000 children are expected to compete.
Classic Kids Photography Promotional Photo Shoot at 917 W. Armitage on Friday, July 31st .
On Friday, July 31st, from 11:00-7:30, Classic Kids partnered with us and offered a special discount to supporters. Families donated at least $50 to The Jasper Against Batten Fund that day and received a 15-minute sitting for their kids, family, etc.. as well as one 4″x 6″ print of their choice. Classic Kids is donating an additional 10% of the proceeds from all photo sales from that day’s shoot. They also matched the donation amount with a gift certificate toward any future sitting. They are the premier photographers in Lincoln Park specializing in children, family and pet portraits and people will get wonderful shots of their family while supporting this cause. Refreshments were provided by Argo Tea and Sweet Mandy B’s, and the balloon animals were unbelievable. A huge thank you to Classic Kids for all of their time, effort and support as well as Argo Tea and Sweet Mandy Bs who have supported us on numerous occasions.
Binny’s Beverage Depot Wine Tasting Benefit at Ivanhoe Castle Tasting Room, 3000 N. Clark St. on Wednesday August 5th
On Wednesday, August 5th from 5:30-8:00pm, Binny’s will be hosting a Wine, Beer and Cocktail Tasting Benefit on behalf of The Jasper Against Batten Fund. Join us for a night of wonderful tastings, art, hors’ doeuvres and a silent auction. Donation: $35 per person. 773-935-9400
Dr. Robert Stevens at Health Source Chiropractic and Progressive Rehab. is offering a full consultation, examination and x-rays (2 views) Value:$150-$200, for no charge in exchange for a minimum donation of $35 to the Jasper Against Batten Fund. 4355 N. Lincoln Avenue, chicago, IL 60618: 773-528-1500
The Kid’s Dance Party at THE HIDEOUT last Sunday was a huge success! The kids had great fun, the parents were laughing! Even Jasper was there being his happy self! What a wonderful way to raise money for this effort.
Gap Kids Store in Lincoln Park, Chicago: Special Promotional Event was great. We hope everyone got their kids great clothing at amazing discounts while helping us fund treatment for Jasper.
The Dutch Club of Chicago held a fundraising event at Sedgwicks Bar and Grill to raise awareness and money for Jasper Against Batten. It was a great success! A big thank you to Andrew Enschede and everyone for making this happen!
A Chicago wide School-based Children’s Initiative is now underway to help create awareness of Batten/LINCL as well as raise funding for treatment that offers real new promise to save the lives of children afflicted with this horrific disorder. approximately 500 cans are being decorated by more than a dozen schools, public and private, throughout the city and distributed to local stores and businesses on behalf of Jasper Against Batten. The beginning of this event at the Oscar Mayer School was covered by ABC7 news, WGN, CLTV and was on the cover of the Sun Times Sunday, 17. Unbelievable!!!
Started by children at the Oscar Mayer Fine Arts Magnet School and Black Bear Academy on behalf of Jasper Against Batten, the children have designing collection cans for this cause and are now distributing them to local stores and businesses throughout Chicago.
